Autism and the Family in Urban India: Looking Back, Looking by Shubhangi Vaidya

By Shubhangi Vaidya

The publication explores the lived fact of parenting and taking care of little ones with autism in modern city India. it truly is in keeping with a qualitative, ethnographic learn of households of youngsters with autism as they negotiate the tough terrain of opting for their baby s incapacity, acquiring a prognosis, getting access to applicable prone and their on-going efforts to come back to phrases with and make experience in their baby s special subjectivity and mode of being. It examines the gendered dimensions of coping and care-giving and the differential responses of dad and mom, siblings and grandparents and the nuclear family community to this advanced and sometimes super demanding situation.
The ebook tackles head at the sombre query, what's going to take place to the kid after the oldsters are long past ? It additionally significantly examines the position of the country, civil society and criminal and institutional frameworks in position in India and undertakes a case learn of motion for Autism ; a Delhi-based NGO arrange by way of mom and dad of youngsters with autism. This ebook additionally attracts upon the writer s personal engagement together with her baby’ s incapacity and hence lends an authenticity born out of lived event and in-depth realizing. it's a beneficial addition to the literature within the sociology of the relatives and incapacity reviews.

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Extra info for Autism and the Family in Urban India: Looking Back, Looking Forward

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1 1 Mapping the Terrain: Examining Discourses … Kanner and Asperger: Foundational Insights In 1943, the Austrian psychiatrist Leo Kanner working at the Johns Hopkins University in the United States published what has been widely regarded as the first systematic description of the condition we call Autism. The paper “Autistic Disturbances of Affective Contact” published in the now defunct American journal, Nervous Child was based on Kanner’s detailed case studies of 11 young patients eight boys and three girls) all born in the 1930s.

Ayurveda) were also remarked upon by some of the respondents. A follow up study with paediatricians and family physicians a decade later (Daley and Barua 2010) indicated greater awareness, familiarity and experience than before, clearly indicating the growing salience of the category with the disability movement coming of age in India and the growth of organizations aimed at providing services, advocacy and training emerging in civil society particularly in the 1990s (Krishnamurthy 2008). Sengupta et al.

However, a child who insists on talking non-stop about toy cars, irrespective of the social situation also exhibits the same core impairment, albeit in a more sophisticated form. Wing and Gould thus highlighted the continuum along which the triad of impairments could be found, and introduced the concept of the ‘autism spectrum’. The notions of theory of mind and weak central coherence have also been deployed by autism researchers like Uta Frith, Francesca Happé and Simon Baron Cohen to explain the core features that define the condition.

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